Topic: A Landscape Map of the Key Global Rare Disease Organisations
A Special Issue of Rare Disease and Orphan Drugs Journal
ISSN 2771-2893 (Online)
Submission deadline: 31 Jul 2023
Guest Editor(s)
Dr. Daniel O'Connor
Medicines and Healthcare products Regulatory Agency, Canary Wharf, London, United Kingdom.
Special Issue Introduction
Dear Colleague,
We are Joint Guest Editors of a special edition of the Rare Disease and Orphan Drugs Journal. We are seeking to develop an issue titled “A Landscape Map of the Key Global Rare Disease Organisations”. This thematic issue will provide an overview of the unique characteristics of each organisation, but also their similarities. We would like to invite you to provide a paper that covers the activities and perspectives of your organisation, and in particular, how it contributes to the rare disease community. In addition, we would like you to focus on what are the opportunities for strengthened collaborations and working together across different organisations and regions. We will construct an overarching editorial based on the submissions we receive.
Yours Sincerely
Dr. Daniel O'Connor and Dr. Anneliene H. Jonker
Articles:
● Philip J. Brooks. Division of Rare Diseases Research Innovation;
● Samantha Parker, David A Pearce. International Rare Disease Research Consortium;
● Ritu Jain. Asia Pacific Alliance of Rare Disease Organisations;
● Durhane Wong-Rieger. Rare Diseases International;
● Daniel Scherman. Foundation For Rare Diseases;
● Daria Julkowska. European Joint Programme on Rare Diseases
We are Joint Guest Editors of a special edition of the Rare Disease and Orphan Drugs Journal. We are seeking to develop an issue titled “A Landscape Map of the Key Global Rare Disease Organisations”. This thematic issue will provide an overview of the unique characteristics of each organisation, but also their similarities. We would like to invite you to provide a paper that covers the activities and perspectives of your organisation, and in particular, how it contributes to the rare disease community. In addition, we would like you to focus on what are the opportunities for strengthened collaborations and working together across different organisations and regions. We will construct an overarching editorial based on the submissions we receive.
Yours Sincerely
Dr. Daniel O'Connor and Dr. Anneliene H. Jonker
Articles:
● Philip J. Brooks. Division of Rare Diseases Research Innovation;
● Samantha Parker, David A Pearce. International Rare Disease Research Consortium;
● Ritu Jain. Asia Pacific Alliance of Rare Disease Organisations;
● Durhane Wong-Rieger. Rare Diseases International;
● Daniel Scherman. Foundation For Rare Diseases;
● Daria Julkowska. European Joint Programme on Rare Diseases
Submission Deadline
31 Jul 2023
Submission Information
For Author Instructions, please refer to https://www.oaepublish.com/rdodj/author_instructions
For Online Submission, please login at https://oaemesas.com/login?JournalId=rdodj&IssueId=rdodj230525
Submission Deadline: 31 Jul 2023
Contacts: Cyndi Guan, Assistant Editor, assistant_editor@rdodjournal.com
